Doc Band Free

It has been a while since I have posted anything so I have some catching up to do. It is official both girls are Doc Band free. We have had two months without the Doc Band. I am starting to see a huge difference in their personalities and the confidence they have. My daughters are starting to try to walk and stand unlike before where we were pushing them to crawl. The Doc Band was a miracle for us and we loved the progress made from it in both girls. They biggest thing now is that the girls are happy and developing as they should. Bailey is still having physical therapy three times a month. She is making progress each week with her neck functions. She is now able to turn each way and hold her head up straight. The muscles in her neck have loosened up and she is not fighting us as much with her exercises. We will be deciding a new goal at the upcoming appointments. These will determine the new exercises and challenges we will give her. Some will be standing and walking exercises.

Brooke is also doing fantastic. She has become our little leader. She crawled first, cruised first, and is now standing first. She will not stand on her own without holding on to something. She knows that she does not need the support but still chooses to hold on. We get her to let go at times and she will stand for a moment or two without the support then grabs on again. She thinks it is a fun game and laughs each time. That is not the plan we had when working on standing. I am expecting to see her standing and possibly walking within a few weeks. Hopefully Bailey will follow a few weeks later as she had before.

They keep growing and changing every day and I am so blessed to have these two little angels in my life.

-Stephanie

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Final Doc Band Appointment

We have had a busy week this week. Bailey had therapy as usual on Monday. Her therapist said that she is doing wonderful. We are in the last part of her neck stretches before we are finished with the stretches and go to maintenance therapy. The therapist will still come out three times a month but we will not do as many stretches during the day. Her neck is sitting straight up and rarely has times that she tilts back over. She also has full movement of it without the previous restrictions. 

Tuesday we went to the Orthopedic surgeon in Lubbock to have her six month check up on her hips. They did an xray to see her growth. Her hip is in the socket like he wants but it has not developed at the same rate as her other hip. So, he wants to see her again in a year to make sure that we are not having any problems. Basically he is monitoring her for precaution more than having concerns. He told me that usually the hips develop fine and that one sometimes develops slower. He said that he didn’t expect for her to need a brace or surgery in the future but he would rather watch her then have problems unexpectedly arise. So, we will return next August for the year follow up. 

Yesterday we drove to Dallas for her scans at the end of this second band. The therapist put all three scans (beginning, middle, and current) up on a screen for me to look at. Bailey has shown tremendous growth in the past eight months. Her eyes are perfectly symmetrical whereas before they were slopping to one side. Her head is rounder and longer. The flat side has rounded out, even in ways that surprised the therapist. Her head looked absolutely beautiful to me. I was even able to see the creases that were in her neck previously gone on her scan which shows the torticollis disappearing.  The therapist informed me that Bailey could still be listed as severe but that she could always be in that category due to the measurements they take. They measure crisscross across her head and then add it to the measurements from the sides and circumference. (I’m not sure on the exact measurement technique). Her head is longer then wide so it throws off the symmetry which makes her fall in the severe category. That isn’t something they can fix. She could round out some in growth throughout her life or she may have a narrower head then Brooke. I don’t think it will be anything that will be drastic but know she will never have a perfect round head. She can get some growth with a third band but there is no way to know how much she can get with the fact that she has slowed down growing. They will be sending Joel and I the report within the next few days to go over. Once Joel and I will decide whether or not the third band is going to be something we want to pursue. She is still wearing the second band until Sunday or Monday to get as much time as we can with it. If we choose to go on to the third band Bailey will have her scans for the band on August 23 and will not receive it until September.

***After several days of discussion we decided not to do the third Doc Band and it has been a blessing for us all. Bailey is happier than ever. Her head is still growing and seems to have rounded out some more on it’s own. We are very happy with the progress she made in the Doc Band but are pleased to have that portion of our lives finished.

-Stephanie

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My Babies Are 11 Months Old

Well, the girls are 11 months old now. Brooke has one tooth and another one breaking through. Bailey is still teething like crazy but has not had any come through. They both LOVE to be outside! They go to the back door and bang on the door trying to go outside. They get mad when we do not let them go out. They have officially upgraded to their big girl car seats this past month. They love being able to sit up and see out the windows. Bailey is currently 28 1/2 inches and weighs 21.2 lbs. She has not gained much this month but is very active so I think that is why she hasn’t gained the weight. Brooke is 29 inches  and weighs 22. 2 lbs. She also has not gain much this month. Both girls are crawling and pulling up on everything. They love to crawl into the kitchen and try to make it to the laundry room. 

Bailey is doing really good on her therapy. Her therapist said that she should only have about two more months of stretching before it stops. They will continue to see her until January because she is under services until then. I have started them on whole milk. I was told by their doctors that they needed to be on whole milk at a year. So, I started Saturday giving them 1 oz of whole milk in their formula bottles. We will continue to increase up until their birthday which will then switch to nothing but milk. They are growing so fast and changing every day. I have found myself looking at their pictures over the past few months and feeling the disbelief that my sweet angels turn a year old in a few weeks. 
-Stephanie

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